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fix: changed working group name
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davidruvolo51 committed Nov 13, 2024
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3 changes: 0 additions & 3 deletions apps/ern-genturis/jsconfig.json

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25 changes: 11 additions & 14 deletions apps/ern-genturis/src/views/view-governance.vue
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:verticalPadding="2"
width="large"
>
<h2 id="genturis-section-governance-title">
The Registry Steering Committee
</h2>
<h2 id="genturis-section-governance-title">The Registry Working Group</h2>
<p>
The GENTURIS registry is embedded in the organisational structure of the
European Reference Network for all patients with one of the genetic
tumour risk syndromes (ERN GENTURIS).
</p>
<p>
The GENTURIS registry steering committee is responsible for the daily
The GENTURIS registry working group is responsible for the daily
management of the GENTURIS registry. The GENTURIS registry coordinator
chairs the GENTURIS registry steering committee and the coordinator of
ERN GENTURIS governs the GENTURIS registry.
chairs the GENTURIS registry working group and the coordinator of ERN
GENTURIS governs the GENTURIS registry.
</p>
<p>
The GENTURIS registry steering committee consists of the following
members.
The GENTURIS registry working group consists of the following members.
</p>
<ul>
<li>The coordinator of ERN GENTURIS</li>
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<p>
ERN GENTURIS Task Force 5 Research is closely involved in the
development of the GENTURIS registry. They are the general management
and sounding board of the GENTURIS registry steering committee.
and sounding board of the GENTURIS registry working group.
</p>
</PageSection>
<PageSection
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<p>
The Data Access Committee (DAC) is closely involved in the procedure of
requesting access to the GENTURIS registry data. The DAC reviews data
requests and access and advises the GENTURIS registry steering committee
as stipulated in the GENTURIS registry Data Access Policy (DAP). The DAC
is composed of qualified health professionals and a patient
representative. One or more of these committee members has also relevant
legal and ethical expertise.
requests and access and advises the GENTURIS registry working group as
stipulated in the GENTURIS registry Data Access Policy (DAP). The DAC is
composed of qualified health professionals and a patient representative.
One or more of these committee members has also relevant legal and
ethical expertise.
</p>
<p>The DAC consists of:</p>
<ul>
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